Brain waves & raves! http://epilepsysupport.yuku.com/forums/17 en-us Copyright 2006, Yuku feeds@yuku.com (FeedMaster) webmaster@yuku.com (WebMaster) Sun, 25 Oct 2009 22:30:24 GMT Yuku Feeds 1.0 http://blogs.law.harvard.edu/tech/rss 60 Yuku http://static.yuku.com//feed/bypass/images/button-yuku.png http://epilepsysupport.yuku.com/forums/17 Yuku - free hosted forums and profiles 88 31 {pics-1.1 "http://www.icra.org/ratingsv02.html" l gen true for "http://yuku.com" r (nz 1 vz 1 lz 1 oz 1 cz 1 ) "http://www.rsac.org/ratingsv01.html" l gen true for "http://yuku.com" r (n 0 s 0 v 0 l 0 )) Search Search Domain q http://yuku.com/search/direct/ <![CDATA[ Just wondering ]]> http://epilepsysupport.yuku.com/topic/8320/t/Just-wondering.html feeds@yuku.com (1goblin) http://epilepsysupport.yuku.com/topic/8320 Tue, 20 Oct 2009 19:34:45 GMT <![CDATA[ My Aura's ]]> http://epilepsysupport.yuku.com/topic/8317/t/My-Aura-s.html
Jamais vu (French meaning "Never seen") is used to describe any familiar situation which is not recognised by the observer. Often described as the opposite of "Deja vu". Jamais vu involves a sense of eeriness and the observers impression of seeing a situation for the first time, despite rationally knowing that they have been... ]]> feeds@yuku.com (1goblin) http://epilepsysupport.yuku.com/topic/8317 Fri, 16 Oct 2009 09:56:14 GMT <![CDATA[ Alternative treatments ]]> http://epilepsysupport.yuku.com/topic/8310/t/Alternative-treatments.html
I'm still here, sorry for not posting for a while. I'm still having trouble convincing Susan that she needs treatment at all, because most seizures pass her by without her noticing. Unfortunately I notice them and I don't get much sleep at night.

She was just 'back home' in Belfast for a few days to see her family. She always finds that particularly stressful for reasons that I don't fully understand. It's possibly simply the... ]]> feeds@yuku.com (heikover) http://epilepsysupport.yuku.com/topic/8310 Wed, 30 Sep 2009 07:55:27 GMT <![CDATA[ Saw a neuro again, for the first time in *years*! ]]> http://epilepsysupport.yuku.com/topic/8285/t/Saw-a-neuro-again-for-the-first-time-in-years-.html
I haven't been to a neurologist in years because I hated my last one, and have had a bad track record with them, so I was just putting it off. But finally bit the bullet and made the appointment.

First of all, neurologists are weird. I love that they are there for people like me and all that, but dude... talk about living inside your own head and never coming out for air.

So she did a whole exam because I'm a... ]]> feeds@yuku.com (Fantastopotamus) http://epilepsysupport.yuku.com/topic/8285 Thu, 03 Sep 2009 02:47:40 GMT <![CDATA[ Trileptal once a day--just wondering something... ]]> http://epilepsysupport.yuku.com/topic/8266/t/Trileptal-once-a-day-just-wondering-something-.html feeds@yuku.com (Fantastopotamus) http://epilepsysupport.yuku.com/topic/8266 Tue, 25 Aug 2009 05:27:50 GMT <![CDATA[ Epilepsy Medication Review ]]> http://epilepsysupport.yuku.com/topic/8265/t/Epilepsy-Medication-Review.html I got a phone call today from my GP surgery saying that she wants to review my Epilepsy medication.

I've got to make an appointment on Wednesday when we take Hannah for her next injection.

feeds@yuku.com (janeyj) http://epilepsysupport.yuku.com/topic/8265 Mon, 24 Aug 2009 21:13:45 GMT <![CDATA[ I tried explaining Epilepsy to my Children yesterday. ]]> http://epilepsysupport.yuku.com/topic/8240/t/I-tried-explaining-Epilepsy-to-my-Children-yesterday-.html
I used the fabulous little book called 'My Mummy Has Epilepsy'.

Hannah who is 4 really enjoyed it and wanted me to read it again but I decided against it because Amber Dawn did not like it because I think it worried her/ scared or perhaps distressed her.
She is 2years and 4 months old. She can speak but is not yet a confident speaker (we sometimes get a couple of words but usually singles).

I have talked about my... ]]> feeds@yuku.com (janeyj) http://epilepsysupport.yuku.com/topic/8240 Sat, 15 Aug 2009 05:25:39 GMT <![CDATA[ New member needing advice ]]> http://epilepsysupport.yuku.com/topic/8241/t/New-member-needing-advice.html Hi everyone, just joined this forum.

My wife, Susan is epileptic. She has had a single seizure in 1985, then regular seizures since about 1999. Initially they were 2 or 3 Grand Mal a year, almost always at night. All she knew about it was a headache in the morning, often a bitten tongue, feeling a bit groggy for a few days and maybe some sore muscles. She was given a series of different drugs in various dosages, I can't remember which ones they were.

For all the... ]]> feeds@yuku.com (heikover) http://epilepsysupport.yuku.com/topic/8241 Thu, 13 Aug 2009 09:07:18 GMT <![CDATA[ Swine Flu and Epilepsy ]]> http://epilepsysupport.yuku.com/topic/8218/t/Swine-Flu-and-Epilepsy.html I'm sure that there are some people with epilepsy who have some concerns about epilepsy and swine fever and would like to ask a few questions. Epilepsy Action has provided the following information and advice which relates to the current situation in the UK:


If you live outside the UK and want specific information for where you live they suggest that you contact... ]]> feeds@yuku.com (Solo52) http://epilepsysupport.yuku.com/topic/8218 Tue, 04 Aug 2009 11:31:23 GMT <![CDATA[ bOOK? My Daddy Has Epilepsy by Stacey Chillemi ]]> http://epilepsysupport.yuku.com/topic/8174/t/bOOK-My-Daddy-Has-Epilepsy-by-Stacey-Chillemi.html Found this 1 tho.... something similar perhaps?

My Daddy Has Epilepsy

by Stacey Chillemi


Janey
PS Daughter number 1 is driving me nuts sitting on HH computer chair and whirling round and... ]]> feeds@yuku.com (janeyj) http://epilepsysupport.yuku.com/topic/8174 Wed, 27 May 2009 10:04:20 GMT <![CDATA[ Important Article from the New York Times addressing Valproate or Depakote patients with children ]]> http://epilepsysupport.yuku.com/topic/8147/t/Important-Article---New-York-Times-addressing-Valproate--Dep.html

I.Q. Harmed by Epilepsy Drug in Utero

Click here to read the article from it's online source.

By RONI CARYN RABIN
Published: April 15, 2009

Pregnant women who took a popular feeds@yuku.com (candy156sweet) http://epilepsysupport.yuku.com/topic/8147 Wed, 15 Apr 2009 22:39:24 GMT <![CDATA[ epilepsy quiz ]]> http://epilepsysupport.yuku.com/topic/8101/t/epilepsy-quiz.html I got 80 percent
http://www.datasync.com/~josw/epilquiz.htm
]]> feeds@yuku.com (PattyM12) http://epilepsysupport.yuku.com/topic/8101 Sat, 24 Jan 2009 18:24:04 GMT <![CDATA[ SeizAlert wouldn't this be great when it is available ]]> http://epilepsysupport.yuku.com/topic/8090/t/SeizAlert-wouldn-t-this-be-great-when-it-is-available.html Tags: None

The recent death of John Travolta's son, Jett, has brought a lot of attention to seizures and epilepsy.

One percent of Americans, 3 million people, suffer from epilepsy.

And their lives are about to be dramatically changed by scientists at Oak Ridge National Laboratory.

For 15 years, Dr. Lee Hively has been working on "SeizAlert", a seizure-detecting device that... ]]> feeds@yuku.com (PattyM12) http://epilepsysupport.yuku.com/topic/8090 Wed, 14 Jan 2009 20:21:48 GMT <![CDATA[ Little Seizures increasing.... ]]> http://epilepsysupport.yuku.com/topic/8085/t/Little-Seizures-increasing-.html I have had an increase of early morning szs recently. I'm not an early riser anymore, I'm ashamed to say, and these szs happen when I'm in that dozy state after 7am. or thereabouts. It again happened today and has left me feeling bulldozed by a bus.

In addition to this, over a longer... ]]> feeds@yuku.com (Miss Ruby) http://epilepsysupport.yuku.com/topic/8085 Mon, 05 Jan 2009 11:39:50 GMT <![CDATA[ Driver with Epilepsy News report, should he be allowed to drive? ]]> http://epilepsysupport.yuku.com/topic/8066/t/Driver--Epilepsy-News-report----allowed--drive-.html This is the news report that I was looking for:

8yrs for epileptic driver in kill crash

"

AN epileptic who killed a woman in a car crash after repeatedly being warned by doctors... ]]> feeds@yuku.com (janeyj) http://epilepsysupport.yuku.com/topic/8066 Mon, 15 Dec 2008 00:46:46 GMT <![CDATA[ What an awful Story in the news ]]> http://epilepsysupport.yuku.com/topic/8065/t/What-an-awful-Story-in-the-news.html
Anyway - Advanced warning is basically put a horrific account on the abuse of man with Epilepsy and Learning difficulties. You know how on some news items they say that people may find some of these images disturbing - the same goes for here.

feeds@yuku.com (janeyj) http://epilepsysupport.yuku.com/topic/8065 Mon, 15 Dec 2008 00:24:54 GMT <![CDATA[ Ambulatory E.E.G ]]> http://epilepsysupport.yuku.com/topic/8015/t/Ambulatory-E-E-G.html
I have had them in the past whilst in hospital etc but must say I am not looking forward to having one at home although I am sure most of us have had one from time to time! Ideally I would go to shops etc where flurescent lights affect me but don't know somehow- I rarely get results anyway - why is... ]]> feeds@yuku.com (hillsong) http://epilepsysupport.yuku.com/topic/8015 Thu, 09 Oct 2008 09:32:45 GMT <![CDATA[ Forum4e ]]> http://epilepsysupport.yuku.com/topic/8009/t/Forum4e.html
Why did I join, not sure really but I can't hurt to have different resources at hand. ES will always be my number one home though

]]> feeds@yuku.com (Miss Ruby) http://epilepsysupport.yuku.com/topic/8009 Wed, 01 Oct 2008 16:56:33 GMT <![CDATA[ Swimming ]]> http://epilepsysupport.yuku.com/topic/8005/t/Swimming.html Everyone,

I asked the swimming teacher if it would be ok, for me to go swimming in her pool (she's the owner) because I have... ]]> feeds@yuku.com (janeyj) http://epilepsysupport.yuku.com/topic/8005 Sat, 27 Sep 2008 13:23:26 GMT <![CDATA[ Ruby ]]> http://epilepsysupport.yuku.com/topic/8003/t/Ruby.html Just noticed that u had updated your Seizure diary in Calendar, sorry to hear u have had another one this week.

http://epilepsysupport.yuku.com/topic/8003 Fri, 26 Sep 2008 22:04:32 GMT